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We are excited to announce that the NYU Dysautonomia Center at NYU Langone Health in New York City, has been approved to begin a natural history study entitled, Natural History of Congenital Insensitivity to Pain with Anhidrosis (CIPA). The information collected will help determine disease progression. Being able to measure progression is essential to finding an effect of an intervention. This is the first step to a clinical trial. Future clinical trials will assess the efficacy of a potential disease-modifying drug.

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