Help us, help the rare
HSAN IV Foundation, Inc.
HSAN IV otherwise referred to as; Hereditary Sensory and Autonomic Neuropathy type IV (HSAN4 or HSAN IV), CIPA, or Congenital Insensitivity to Pain with Anhidrosis is a rare genetic disorder that is characterized by an inability to feel pain and a decreased or absent ability to sweat (anhidrosis). Affected individuals also cannot feel temperature and cannot distinguish between hot and cold.
HSAN IV is caused by mutations in the NTRK1 Gene, the gene which is responsible for giving the body instructions to make a protein which is essential to the development and survival of nerve cells, specifically sensory neurons, those that carry information in regards to pain, temperature and touch.
The HSAN IV foundation was founded to spread awareness and fund gene therapy research as we work to increase the quality of life for those affected and find a cure/treatment for HSAN IV. There are only several hundred reported diagnoses of HSAN IV in the world.
The HSAN IV foundation is a Federal tax exempt private charity under Section 501(c)(3) and has been approved by the U.S. Internal Revenue Service.
About Us
Founded by Nicole Carter, the HSAN IV Foundation began following the diagnosis of Bianca Rose Carter. We have made it our mission to raise money for medical research to be performed on this rare disease.
Nicole Carter
Katherine Kettenbach
Help Us, Help The Rare
Help Us, Help The Rare
Your donation helps our organization support studies, spread awareness, and fund research!
You may donate by check:
The HSAN IV Foundation
P.O. Box 3318
Narragansett, Rhode Island 02882
OR by filling out the form below.