What is HSAN IV?
HSAN IV is caused by mutations in the NTRK1 Gene, the gene which is responsible for giving the body instructions to make a protein which is essential to the development and survival of nerve cells, specifically sensory neurons, those that carry information in regards to pain, temperature and touch.
What we're up to
Where the foundation is at with our mission.
Join our Cause!
There are currently no scheduled events.
Help us, help the rare
Help Us, Help The Rare
Your donation helps our organization support studies, spread awareness, and fund research!
You may donate by check:
The HSAN IV Foundation
P.O. Box 3318
Narragansett, Rhode Island 02882
OR by filling out the form below.