What is HSAN IV?
HSAN IV is caused by mutations in the NTRK1 Gene, the gene which is responsible for giving the body instructions to make a protein which is essential to the development and survival of nerve cells, specifically sensory neurons, those that carry information in regards to pain, temperature and touch.
Inability to feel pain
Decreased ability to sweat
Cannot feel temperature
Few reported diagnoses
What we're up to
Where the foundation is at with our mission.
New Study in NYC!
New website!
Inaugural HSAN IV Foundation Golf Tournament Raises $22,000!
What we do.
The HSAN IV Foundation was founded to spread awareness and fund gene therapy research as we work to increase the quality of life for those affected and find a cure/treatment for HSAN IV. There are only several hundred reported diagnoses of HSAN IV in the world.
Join our Cause!
Upcoming Events
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Help us, help the rare
Help Us, Help The Rare
Your donation helps our organization support studies, spread awareness, and fund research!
You may donate by check:
The HSAN IV Foundation
P.O. Box 3318
Narragansett, Rhode Island 02882
OR by filling out the form below.