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What is HSAN IV?

HSAN IV is caused by mutations in the NTRK1 Gene, the gene which is responsible for giving the body instructions to make a protein which is essential to the development and survival of nerve cells, specifically sensory neurons, those that carry information in regards to pain, temperature and touch.

Inability to feel pain

Decreased ability to sweat

Cannot feel temperature

Few reported diagnoses

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What we're up to

Where the foundation is at with our mission.

The HSAN IV Foundation
New website!
We are excited to launch our new website in the mission to help those diagnosed with Hereditary Sensory and Autonomic Neuropathy type IV. We have made it our mission to raise money for…
The HSAN IV Foundation
New Study in NYC!
We are excited to announce that the NYU Dysautonomia Center at NYU Langone Health in New York City, has been approved to begin a natural history study entitled, Natural History of Congenital Insensitivity…
The HSAN IV Foundation
Inaugural HSAN IV Foundation Golf Tournament Raises $22,000!
The HSAN IV Foundation held its inaugural golf tournament on Monday, May 8th 2023 at Rockport Golf Club in Rockport, Massachusetts. The event was a massive success, raising funds of $22,000 to help…
About Us

What we do.

The HSAN IV Foundation was founded to spread awareness and fund gene therapy research as we work to increase the quality of life for those affected and find a cure/treatment for HSAN IV. There are only several hundred reported diagnoses of HSAN IV in the world.

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Your donation helps our organization support studies, spread awareness, and fund research!

You may donate by check:

The HSAN IV Foundation
P.O. Box 3318
Narragansett, Rhode Island 02882

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The HSAN IV Foundation is a Federal tax exempt private charity under Section 501(c)(3) and has been approved by the U.S. Internal Revenue Service.