What is HSAN IV?
HSAN IV is caused by mutations in the NTRK1 Gene, the gene which is responsible for giving the body instructions to make a protein which is essential to the development and survival of nerve cells, specifically sensory neurons, those that carry information in regards to pain, temperature and touch.
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You may donate by check:
The HSAN IV Foundation
P.O. Box 3318
Narragansett, Rhode Island 02882
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